It takes less than 10 minutes to create your own, unique-to-you Survivorship Care Plan using OncoLink’s OncoLife online builder. Go to https://oncolife.oncolink.org. Follow in the steps of the nearly 100,000 people who have already used the OncoLife Survivorship Care Plan builder to improve their quality of life.
Who is OncoLink? OncoLink was the first cancer information website on the Internet, started in 1994, and remains one of the largest. Christine Hill-Kayser, MD is the Editor in Chief of Oncolink. She is also Chief of the Pediatric Radiation Oncology Service and Associate Professor of Radiation Oncology at the University of Pennsylvania and Children’s Hospital of Philadelphia.
Dr. Hill-Kayser describes OncoLink’s mission to provide Survivorship Care Plans to survivors here:
OncoLink launched the OncoLife Survivorship Care Plan in 2007. We are a group of healthcare providers with a mission: to provide comprehensive, accessible, and accurate information for people experiencing cancer – as patients, caregivers, and, of course, survivors. The intention of OncoLife has always been to provide customized information and recommendations for people at any phase of the survivorship journey – from the moment of diagnosis, until years after active treatment.
Five years after our initial launch, we were able to begin learning at a more granular level about different populations of cancer survivors and their unique needs. We began to incorporate the individual experience – in the form of patient reported outcomes – into care plans. We asked survivors what bothersome late or long-term effects they might be experiencing, and their reports drove the prioritization of their care plans. We learned that fatigue, sexual changes, and neurocognitive changes are experienced by huge numbers of survivors, and are frequently of highest priority to survivors, although they are less frequently addressed by healthcare providers than many other late effects.